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Wednesday, March 14, 2012

Oncologist Visit

I wasn't expecting the oncologist to do much, but boy did they make me nervous! He is a radiation oncologist so he doesn't do much (if anything, I'm not 100% sure though) with patients until they've been diagnoses with cancer ad referred for radiation. I called him because back in 2010 he was such a great help to me. he understood and knew about phyllodes tumors, and was willing to answer all my questions.

So I went to see him on Monday. As I said, I called to find out what I needed to do and the nurse called me back. Anyway, he remembered me and asked if I had the resection done. He had recommended the surgeon go back in and take some more tissue because he didn't agree that they had gotten a wide enough margin. I explained the surgeon refused to do it. He looked a bit angry but hid it fairly well. He then agreed that yes this thing in my back might be a phyllodes but he can't say for sure whether it is or not. I said I understood that but I just wanted to know if I was thinking correctly or if I was just going off half-cocked for nothing.

I understand docs have to be careful what they say to patients, and he was very careful how he worded things. But basically yes it could be a phyllodes, it could also be any number of other things. He said I need to see a neurosurgeon to have it evaluated and that it should be removed and biopsied. So nope I'm not over-reacting, which is nice to know since I am aware that I can do that at time. It is possibly a Phyllodes Tumor, but only way to be sure is biopsy.

Soooooo..time to get a neurosurgeon to see me.

8 comments:

  1. better to go and get it sorted and then you will know and can deal with anything that arises . the worst bit is worrying and the not knowing ... (((hugs)) love mouse xxxx

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  2. Good for you in taking charge of this issue. I'll keep sending positive thoughts your way as you go through this uncertainty. The mental taxation must be exhausting!

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  3. =/

    I know how much I hate waiting. I can't imagine what you are going through.

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  4. Kudos to you for being persistent. Sometimes the patient does know best. My thoughts and prayers are with you.

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  5. Good luck with the neurosurgeon

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  6. Ooh Missy, I'm glad you were persistent and got a proper response. We have to advocate for ourselves now and be bossy with the health care people. I am sending you hugs and prayers.

    Anne

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  7. Keep then on their toes Raven. Some times you have to get on them to keep them in line. Good luck !!

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  8. I'm glad you talked with the doctor to get some more answers and now you know what needs to be done ;)... I can just imagine what you are going through so I'm sending all my positive and good thoughts on your way and I'm praying that the neurosurgeon gives you good news :) Big Hugs,

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Missy (aka Raven)