I wasn't expecting the oncologist to do much, but boy did they make me nervous! He is a radiation oncologist so he doesn't do much (if anything, I'm not 100% sure though) with patients until they've been diagnoses with cancer ad referred for radiation. I called him because back in 2010 he was such a great help to me. he understood and knew about phyllodes tumors, and was willing to answer all my questions.
So I went to see him on Monday. As I said, I called to find out what I needed to do and the nurse called me back. Anyway, he remembered me and asked if I had the resection done. He had recommended the surgeon go back in and take some more tissue because he didn't agree that they had gotten a wide enough margin. I explained the surgeon refused to do it. He looked a bit angry but hid it fairly well. He then agreed that yes this thing in my back might be a phyllodes but he can't say for sure whether it is or not. I said I understood that but I just wanted to know if I was thinking correctly or if I was just going off half-cocked for nothing.
I understand docs have to be careful what they say to patients, and he was very careful how he worded things. But basically yes it could be a phyllodes, it could also be any number of other things. He said I need to see a neurosurgeon to have it evaluated and that it should be removed and biopsied. So nope I'm not over-reacting, which is nice to know since I am aware that I can do that at time. It is possibly a Phyllodes Tumor, but only way to be sure is biopsy.
Soooooo..time to get a neurosurgeon to see me.
Wednesday, March 14, 2012
8 comments:
Thank you very much for visiting my internet home for my crafts. I appreciate your taking the time to visit and/or comment.
If you have any questions (looking for designer information of a piece I'm stitching, how to do cross stitch etc. ) please feel free to contact me. You will find my email address in my profile and I will do my best to either answer your question, or find information that can help you get your answer.
Thank you again for the visit and I hope you have a great day!
Sincerely,
Missy (aka Raven)
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better to go and get it sorted and then you will know and can deal with anything that arises . the worst bit is worrying and the not knowing ... (((hugs)) love mouse xxxx
ReplyDeleteGood for you in taking charge of this issue. I'll keep sending positive thoughts your way as you go through this uncertainty. The mental taxation must be exhausting!
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ReplyDeleteI know how much I hate waiting. I can't imagine what you are going through.
Kudos to you for being persistent. Sometimes the patient does know best. My thoughts and prayers are with you.
ReplyDeleteGood luck with the neurosurgeon
ReplyDeleteOoh Missy, I'm glad you were persistent and got a proper response. We have to advocate for ourselves now and be bossy with the health care people. I am sending you hugs and prayers.
ReplyDeleteAnne
Keep then on their toes Raven. Some times you have to get on them to keep them in line. Good luck !!
ReplyDeleteI'm glad you talked with the doctor to get some more answers and now you know what needs to be done ;)... I can just imagine what you are going through so I'm sending all my positive and good thoughts on your way and I'm praying that the neurosurgeon gives you good news :) Big Hugs,
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