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Saturday, March 10, 2012

Return Call From Oncologist

I put a call in yesterday (Friday) to the oncologist I saw back in 2010 after the biopsy results came back. I wanted to be sure that I had the right information about Phyllodes tumors and that everything that could be done had been done, so I went to see him even though the surgeon told me it wasn't necessary.

So I called his office leaving a detailed message and asking what tests or things I should be asking my GP about when I see him on Wednesday. The oncologist's nurse called me back a couple hours later after discussing my message with the doctor.  They apparently pulled my medical file and looked it over. The doctor is "concerned that it very well could be a recurrence of Phyllodes" and wants to see me "asap", so I was given an appointment for Monday at 11:00AM (central usa time).

The nurse told me some of the things I already knew regarding chances of recurrence, chances it could be another low-level malignant/benign Phyllodes, chances it could be a more malignant tumor (mid-level or highly malignant metastisising) etc. etc. She said that I was doing the right thing by getting it checked out and said with my history it needs to be done.

So I am now a tad more nervous and scared. To have a cancer doctor say he is "concerned" and "wants to see you ASAP" is a little unnerving. Though it is still possible this will turn out to not be a phyllodes, so I am holding on to that and doing what the doctor wants me to do.

I am still very very scared.

Thank you Sara, Christine, Mouse, Daffycat, Terriboog, Jeanne, Anne and Brigitte for your wonderful comments and well wishes. I greatly appreciate them!

13 comments:

  1. My thoughts will be with you during this uncertain time. I am so happy that you didn't accept the answer the previous doctor gave you and pursued a second opinion.

    Hugs and best wishes

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  2. Sending positive thoughts & prayers your way for your appointment on Monday. I hope all goes well.

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  3. Will keep you in my prayers and send positive thoughts!

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  4. My prayers and thoughts are with you. Waiting is just so damn hard. Keep strong and think positive. Stress and worry is so hard on the body as I'm living proof.


    BIG HUGS!!!!
    -missy-

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  5. It's good that your doctor wants to see you...yes, it's also scary, but it's good that he is taking the time and not acting like this is unimportant. I am sendings lots of healing thoughts your way, and you will be in my prayers. Hugs.....

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  6. Oh dear Missy. I truly hope that the doctor is just being overly cautious and wants to check everything out..I pray for a not scary outcome for you.

    Take care,

    Hugs

    Anne

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  7. I'll be thinking of you when you have your Doctors appointment.

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  8. Sorry that it's such a worrying time for you. Doctor's will always be over cautious to ensure they don't miss anything, but he's right to get it looked at sooner rather than later, these things have much better outcomes if they are dealt with quickly.

    I can understand you being scared, I would be and there is really little I can say to make it any better. Once you've seen the doctor you'll have a better idea of what you might be facing,

    I truly hope that it's not as bad as it first seems and I'll be thinking of you and sending good wishes and prayers your way. Please let us know what the doctor says.

    Hugs

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  9. I'm pleased the oncologist could see you so quickly but I'm sure this weekend seems unending to you. *big hugs*

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  10. Hi Raven, My thoughts and prayers go out to you. However, I am sure that the oncologist is just being thorough and that it will all be okay in the end. Take care my stitchy friend.
    hugs, Kaye xoxo

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  11. ohhhh (((((huge hugs)))) fingers n toes crossed for you :) love mouse xxxxxx

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  12. Hang in there. This anxiety must be so hard to deal with. Sending positive vibes your way.

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  13. Just to let you know I'm thinking of you.
    Jo
    x

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Missy (aka Raven)